My big sister threw her back out and has been bed ridden since Wednesday. (Do you think she called her sister to tell her of this? No. Not at all. Hmph.) My poor sissy.
My best friend's grandma died. She was almost 90 and very, very ill. My friend has a great, positive mentality, knowing that her grandma has been suffering for a while, but it's still very hard.
My cousin had a baby, which is very, very exciting, but he came 5 and a half weeks early, which is scary. I feel for her, knowing how rough it is to have a preemie. Also, she's an OB nurse and has seen quite a few babies born (including my niece!) and she's pretty sure she heard her baby's clavicle breaking as he came out. Poor little sugar. His name is Ryland, and he's 5 pounds and 10 ounces and 18 inches long and I'm told he has the Branson nose. I'll update y'all as soon as I know anything more. I'll be calling my uncle while I'm making supper to get updates.
Last but certainly not least, I have really, really good news. Ace was supposed to have his MRI September 6th at the children's hospital. They're not covered by our insurance, and I am SHOCKED (not), so Ace's pediatrician had to move it to a hospital that is covered. They have an opening next Wednesday. I'm feeling a little overwhelmed and scared, as watching my precious baby go under general anesthesia wasn't high on my list of priorities, but I'm glad I don't have to spend yet another month worrying about it, and I'll get answers sooner than later. I'm honestly a little fuzzy as to what an MRI will tell us, but I'm talking to other moms of babies with cerebral palsy to get more answers about that.
Y'all's prayers are obviously really, really appreciated.
3 months ago
5 comments:
OMG Stacey!! I came into your life at the right time, b/c this sort of thing TERRIFIES me! Therefore, my prayers become the frantic kind of begging, pleading tear-filled ones that God finds hard to ignore! I had a terrible pregnancy with Landon, a hard delivery, a STILL ongoing recovery (blah!)...and I still love my little boo sooooo much that it all still seems worth it! (Not in a huge hurry to do it over again, but I am CRAZY about this baby!). I've had my fair share of scary medical tests (including MRIs) and I've always been so scared I'll have to sit by and watch my son go through something scary. Then he'd be scared and I'd be even more scared. I am NOT the kind of person who does well with this sort of thing!----My point? ;o) Just wanted to let you know I'm thinking about you and PRAYING--and not those "mention a stranger really quick while I'm praying about my own stuff" prayers, but real ones. Real "scared mom" prayers. Everything will be okay--I can feel it!
If you ever have time, and you feel like telling the story for the millionth time in the last 13 months, can you tell me (or reference me to the right point in your blog) what's going on with Ace's health? Is it "just" (ha ha, right?) cerebral palsy?
Hey, Jennifer, you're good people. Ace was born 11 weeks early and so far, yeah, it's JUST been cerebral palsy. He hasn't had any respiratory or immune problems yet, but we've still got one more touchy year of RSV season to fight through.
He was developing right on track until I realized that he was a little too old to not have rolled over yet - he was about 8 or 9 months old. The pediatrician got him a physical therapist, who said she was concerned about spasticity (tightness) in his legs. She called the pediatrician, who set Ace up with a neurologist, who said that he does have what's called spastic diplegia, which is a form of cerebral palsy. The neuro, ped, and PT all say it's very mild, but he'll continue to have some developmental difficulties and delays for a good while yet. For example, he's 13 months old/11 adjusted, and he's not sitting up yet. It's all related to his CP.
I REALLYREALLY appreciate the prayers. Knowing that people are talking to God on my and Ace's behalf is a huge relief and knowing that we've got other peoples' sympathy is great too. Thanks!!! :)
Just discovered your blog, which is very cute. I'll be praying for you and Ace.
My daughter Lucy has had some MRIs, (she has hydrocephalus) and it was not nearly has scary as I thought it would be. Hopefully, you and Ace will have a good experience, too.
General anesthesia for an MRI? I guess it makes sense for an infant, but wow, how scary.
We'll make sure to be thinking about you and Ace and Drew, as well as your other family and friends.
I stumbled across your blog and wanted to let you know you'll be in our thoughts and things WILL turn out! For one, it sounds like he has a great mom.
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