I mentioned in passing the other day that Ace's physical therapist is concerned that he is showing signs of spasticity in his leg and possibly his back muscles. I still don't want y'all to look it up, because words pop up that I don't want to consider, but on a very basic level, it's involuntary tightening of certain muscle groups. His PT mentioned this to his pediatrician, who referred him to a neurologist. I've been waiting for paperwork from the neurologist for a week and a half, including the appointment information, and finally got it yesterday. The appointment's not till August 22nd. And that's just the initial consultation with the doctor, who knows how long he'll have to wait for an actual diagnostic workup.
I'm not too happy about this... having to wait 3 damn months to find out if something's wrong with my kid's brain doesn't sit too well with me. I called and got myself put on a cancellation list, and hopefully they'll call me if they get a cancellation. I'm thinking that the fact that I'm so close will work to my advantage. The neurologist's group is in Jackson, at the Children's Hospital, which is at most a 20 minute drive from here. Hopefully, they'll call me for a same-day cancellation, where they wouldn't call someone who's further away.
I'm sure if they thought something was really, really wrong, they'd get him in sooner, so this is good news in a way. Still. 3 months.
In the words of one of my favorite TV doctors, frick frickity frick.
La lala la, la la la. Positive, positive.
Drew's coming home today! YAY!
3 months ago
2 comments:
Dangit! Someone should block me from using Google. I'm so sorry. I know you're probably scared to death right now. But remember, our little borgling has a habit of coming through on top. If there's something wrong... IF... you and Drew and Ace will tackle it like gangbusters, I'm sure. Don't assume the worst.
As he's a preemie, he may have problems now that disappear as he ages. A lot of things can cause muscle problems. Some of them are damned-well frightening, others are very easy to deal with.
Look at me. They said 12 years ago that I'd probably lose the ability to walk within a few months. Hello! You've seen me shake my bootie! Yes, sometimes my legs give out and running a marathon isn't happening. I still have A LOT of muscle spasms in my legs and back but they pass and I can go back to shaking my groove thang. And I can be a tree with the best of 'em.
You're in my prayers, I assure you. You don't mind if they're in Hebrew, do you?
Major prayers.
I think I'd go nuts having to wait until August! Like you said, though, that's probably a good sign.
For your sanity I sure hope they get you in sooner.
Ace will be in our prayers. He's such a cutie!
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